This PhD project aims at establishing a comprehensive ethical framework for a tailored genetic treatment development process. To achieve this goal, the project will (1) define ethical standards for innovative trial types for single-patient genomic medicine (n-of-1 trials; platform, umbrella and basket trials), (2) develop appropriate informed consent procedures based on conceptual analysis and socio-empirical analyses of patients’ informed consent needs, and (3) develop innovative approaches for pricing, coverage, and prioritisation of high-cost/high-effect single-patient ASO treatments.
More information about the position and how to apply can be found here: https://euraxess.ec.europa.eu/jobs/181623
Current application deadline: Sunday 13th October 2024